Web Statistics

Do You Have a Child with Celiac? Local Support

May 24, 2012

Managing a diet for kids with Celiac disease isn’t easy, especially when you have vendors like Domino’s trying to cash in on the gluten-free diet with pizza crust that isn’t actually recommended for those with celiac disease. So, how do you figure out how to avoid the protein gluten?

What is celiac?
From Mayo Clinic: Celiac (SEE-lee-ak) disease is a digestive condition triggered by consumption of the protein gluten, which is primarily found in bread, pasta, cookies, pizza crust and many other foods containing wheat, barley or rye. People with celiac disease who eat foods containing gluten experience an immune reaction in their small intestines, causing damage to the inner surface of the small intestine and an inability to absorb certain nutrients. Celiac disease can cause abdominal pain and diarrhea. Eventually, the decreased absorption of nutrients (malabsorption) that occurs with celiac disease can cause vitamin deficiencies that deprive your brain, peripheral nervous system, bones, liver and other organs of vital nourishment.

The only way to manage celiac disease is by changing your diet. No easy task for kids.

A local support group:
Brooklyn mom, Monica, in response to her son’s diagnosis at 21 months, (he’s 4 now and thriving), struggled to find local support, so she started reaching out online which led to periodic get-togethers. She has now started an online group and offline group that offers local support.

To join the group:
go to: http://health.groups.yahoo.com/group/NYC_families_celiac/

The group meets periodically to share recipes, experiences, and tips on  navigating the world without gluten (i.e., school, social gatherings, etc.).

Their next gathering is:
Sunday, June 3
Fort Greene Park, Brooklyn